A few days ago I saw a post like this on a German blog and I thought: Hey, that’s maybe something even *you* could manage. Let’s see…
So what’s going on in my life / on my mind at the moment?
All Souls Trilogy
I’m reading the third and final book Book of Life at the moment and it’s fine, but I think the second book snubbed me of a lot of my enthusiasm from the first book, which makes me a bit sad, because I really loved the first one. I still want to see how it will all turn out in the end.
Blasting on my car stereo. In (bad quality) youtube clips from a “secret” gig he played in Boston this week. In my social media feeds. On my mind *g*. I don’t know what caused that once again. Cute photo of him and a dog? Adorable photo of him and his girlfriend in bed? (Get your mind out of the gutter *g*). Only 16 more days until the book event in London and 19 days till the Royal Albert Hall gig. I can’t wait!
I already managed to pick up some GB currency this afternoon. To top up my Oyster card, get something to drink/eat and such on the first day or two. Getting the “foreign” money always makes a trip abroad more real, doesn’t it? And me more excited :-)
On Thursday I’ll be spending most of the day at my neurologist, as I’ll be finalizing my change of treatment. I’ve been on Tysabri (as IV every 4 weeks) for over 3.5 years now, but will start with Gilenya (oral tablet daily) on Thursday. For months I’ve planned to write a blog post about it, but as with so many other things I never felt in the right mood.
I didn’t have a relapse for almost 4 years now except for one right after I started with Tysabri, so the decision to give up on this highly effective drug was weighing me down for months, I think. But the risk for a life-threating PML just got bigger and bigger to an extend that I just didn’t feel comfortable with anymore.
Gilenya comes with a lesser risk, but might not be as effective. I just have to wait and see, I guess. There is the risk of cardiac arrythmia after the first dose, that’s why I have to stay under supervision (and hooked up to an EKG for a couple of hours on that day. Fun, isn’t it. *sigh*)
A part of me is playing it cool and doesn’t worry and another part of me is a bit terrified. Because after all it’s a huge change in my treatment plan and all that and what if it doesn’t work or backfired or whatever. I just hope it will go well on Thursday and after.
The second half of Season 1 is less than a month away. Finally! On Friday early morning (my time) the Outlander panel at PaleyFest will be streamed live and I’m planning to catch that. But I took Friday off from work, because I wasn’t sure how I would feel after starting with new meds on Thursday, so… I also plan to meet up with (yet another pregant with twins friend) on Friday.
I’m not getting enough of it at the moment, at least that’s what it feels like, even though I’m not going to bed all that late. And no, getting up early to catch a live stream doesn’t have anything to do with that either. Because that hasn’t happened yet, but I’m still extremely tired each evening…
Same old, same old. I’m still struggling with some of my projects/tasks, but that’s more psychologically than caused by the work itself. I don’t know.